The Sisters Who Can't Go Out In Sunlight | BORN DIFFERENT

SUBSCRIBE to Truly: http://bit.ly/Oc61Hj

SISTERS Amielle, 8, and Taya, 3 from Sydney, Australia both have Xeroderma Pigmentosum, a very rare condition that means if the girls are exposed to sunlight their skin can be burnt very badly. Amielle’s first burn happened when she was just three and a half months old. Initially doctors said that she just had sensitive skin and it wasn’t until Amielle was 7 that she was finally diagnosed with XP. After the diagnosis the family took a DNA test and discovered that Taya also has the rare condition. The girl’s parents, Nick and Yvette have to take a number of safety measures when the sisters go outside. To ensure they are not exposed to any UV light at all the girls have to wear a thick layer of sunblock, gloves and a protective visor before leaving the house. Nick and Yvette hope to raise money via GoFundMe to build a covered play area in their garden so the girls can have fun outside freely. Due to their condition Amielle and Taya can only visit the beach at night to be completely safe. Truly visited the family during one of their evening trips to their local beach to see them all enjoy the seaside together.

Support Amielle and Taya here: https://www.gofundme.com/f/help-ami-taya-walker-play-and-stay-safe

Videographer: Chris Butle
Producers: Tom Jones, Yasmin Walker
Editor: Paul Zeller

Truly is on TikTok! https://www.tiktok.com/@truly_show

Now you can watch our videos in Spanish!: http://bit.ly/Suscribirse_truly_ES

Click here to follow your favourite Truly shows on Instagram!
Truly - https://www.instagram.com/trulyshow
Born Different - https://www.instagram.com/borndifferentshow/
Shake My Beauty - https://www.instagram.com/shakemybeauty/
Hooked On The Look - https://www.instagram.com/hookedonthelookshow/
Love Don’t Judge - https://www.instagram.com/lovedontjudgeshow/
Beastly - https://www.instagram.com/beastlyshow/
Ridiculous Rides - https://www.instagram.com/ridiculousridesshow/
Dog Dynasty - https://www.instagram.com/dogdynastyshow/

For more amazing content, click here!
Beastly: https://www.youtube.com/channel/UC9LxuffQCm_Z4KBCoXZvSHA
Barcroft Cars: https://www.youtube.com/user/BarcroftCars/featured